Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care
In the context of the Ukrainian crisis, as ERNs we need to know how many patients with rare diseases get care outside Ukraine. In order to adapt the coordination it became important to follow the needs to know if initiatives are adapted to the situation.
Thus the ERN-CG launched a continuously open very simple form for each Ukrainian patient ERNs HCP have been managing: https://ec.europa.eu/eusurvey/runner/ERNukrainianRefugeesCare
If you are an ERN HCP that currently care for Ukrainian refugees, do not hesitate to complete this survey.