.png)
ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS
How to contact ERNs?
By contacting a specific ERN by email
-
Ask for specific rare disease expert location
-
Ask for diagnostic advice
-
Ask for therapy advice
-
Ask for visioconference with an ERN team
-
Ask for support to access orphan drugs
Via the virtual clinic CPMS
Only for ERN HCP members
Email contact of all ERNs
ERN BOND
European Reference Network on rare bone diseases
Contact: info@ernbond.eu
ERN CRANIO
European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders
Contact: ern-cranio@erasmusmc.nl
Endo-ERN
European Reference Network on Rare Endocrine Conditions
Contact: info@endo-ern.eu
ERN EpiCARE
European Reference Network on rare and complex epilepsies
Contact: info@epi-care.eu / ukraine.epilepsies@epi-care.eu
ERKNet
European Reference Network on kidney diseases
Contact: contact@erknet.org
ERN-RND
European Reference Network on neurological diseases
Contact: info@ern-rnd.eu
ERNICA
European Reference Network on inherited and congenital anomalies
Contact: ern-ernica@erasmusmc.nl
ERN LUNG
European Reference Network on respiratory diseases
Contact: info@ern-lung.eu
ERN Skin
European Reference Network on skin disorders
Contact: coordination@ern-skin.eu
ERN EURACAN
European Reference Network on adult cancers (solid tumours)
Contact: contact@euracan.eu
ERN EuroBloodNet
European Reference Network on haematological diseases
Contact: coordination@eurobloodnet.eu
ERN eUROGEN
European Reference Network on urogenital diseases and conditions
Contact: eurogen@uroweb.org
ERN EURO-NMD
European Reference Network on neuromuscular diseases
Contact: info@ern-euro-nmd.eu
ERN EYE
European Reference Network on Rare Eye Diseases
Contact: contact@ern-eye.eu
ERN GENTURIS
European Reference Network on genetic tumour risk syndromes
Contact: genturis@radboudumc.nl
ERN GUARD-HEART
European Reference Network on diseases of the heart
Contact: contact@guardheart.ern-net.eu
ERN ITHACA
European Reference Network on congenital malformations and rare intellectual disability
Contact: coordination@ern-ithaca.eu
MetabERN
European Reference Network on hereditary metabolic disorders
Contact: coordination@metab.ern-net.eu
ERN PaedCan
European Reference Network on paediatric cancer (haemato-oncology)
Contact: ERNPaedCan@ccri.at
ERN RARE-LIVER
European Reference Network on hepatological diseases
Contact: ERN.RareLiver@uke.de
ERN ReCONNET
European Reference Network on connective tissue and musculoskeletal diseases
Contact: ern.reconnet@ao-pisa.toscana.it
ERN RITA
European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases
Contact: contact-rita@ern-net.eu
ERN TRANSPLANT-CHILD
European Reference Network on Transplantation in Children
Contact: coordination@transplantchild.eu
VASCERN
European Reference Network on Rare Multisystemic Vascular Diseases
Contact: vascern.coordination@aphp.fr