ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS

 

How to contact ERNs?

By contacting a specific ERN by email

  • Ask for specific rare disease expert location

  • Ask for diagnostic advice

  • Ask for therapy advice

  • Ask for visioconference with an ERN team

  • Ask for support to access orphan drugs

Via the virtual clinic CPMS

Only for ERN HCP members

 
 

Email contact of all ERNs

ERN BOND

European Reference Network on rare bone diseases

Contact: info@ernbond.eu

ERN CRANIO

European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders

Endo-ERN

European Reference Network on Rare Endocrine Conditions

ERN EpiCARE

European Reference Network on rare and complex epilepsies 

ERKNet

European Reference Network on kidney diseases

ERN-RND

European Reference Network on neurological diseases

Contact: info@ern-rnd.eu

ERNICA

European Reference Network on inherited and congenital anomalies

ERN LUNG

European Reference Network on respiratory diseases

ERN Skin

European Reference Network on skin disorders

ERN EURACAN

European Reference Network on adult cancers (solid tumours)

ERN EuroBloodNet

European Reference Network on haematological diseases

ERN eUROGEN

European Reference Network on urogenital diseases and conditions

ERN EURO-NMD

European Reference Network on neuromuscular diseases

ERN EYE

European Reference Network on Rare Eye Diseases

ERN GENTURIS

European Reference Network on genetic tumour risk syndromes

ERN GUARD-HEART

European Reference Network on diseases of the heart

ERN ITHACA

European Reference Network on congenital malformations and rare intellectual disability

MetabERN

European Reference Network on hereditary metabolic disorders

ERN PaedCan

European Reference Network on paediatric cancer (haemato-oncology)

ERN RARE-LIVER

European Reference Network on hepatological diseases

ERN ReCONNET

European Reference Network on connective tissue and musculoskeletal diseases

ERN RITA

European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases

ERN TRANSPLANT-CHILD

European Reference Network on Transplantation in Children

VASCERN

European Reference Network on Rare Multisystemic Vascular Diseases