top of page

ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS

ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS: Bienvenue

How to contact ERNs?

By contacting a specific ERN by email

  • Ask for specific rare disease expert location

  • Ask for diagnostic advice

  • Ask for therapy advice

  • Ask for visioconference with an ERN team

  • Ask for support to access orphan drugs

Via the virtual clinic CPMS

Only for ERN HCP members

ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS: Services
ERNs SUPPORT FOR HEALTHCARE PROFESSIONALS: Liste

Email contact of all ERNs

ERN BOND

European Reference Network on rare bone diseases

Contact: info@ernbond.eu

ERN CRANIO

European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders

Contact: ern-cranio@erasmusmc.nl

Endo-ERN

European Reference Network on Rare Endocrine Conditions

Contact: info@endo-ern.eu

ERN EpiCARE

European Reference Network on rare and complex epilepsies 

Contact: info@epi-care.eu / ukraine.epilepsies@epi-care.eu

ERKNet

European Reference Network on kidney diseases

Contact: contact@erknet.org

ERN-RND

European Reference Network on neurological diseases

Contact: info@ern-rnd.eu

ERNICA

European Reference Network on inherited and congenital anomalies

Contact: ern-ernica@erasmusmc.nl

ERN LUNG

European Reference Network on respiratory diseases

Contact: info@ern-lung.eu

ERN Skin

European Reference Network on skin disorders

Contact: coordination@ern-skin.eu

ERN EURACAN

European Reference Network on adult cancers (solid tumours)

Contact: contact@euracan.eu

ERN EuroBloodNet

European Reference Network on haematological diseases

Contact: coordination@eurobloodnet.eu

ERN eUROGEN

European Reference Network on urogenital diseases and conditions

Contact: eurogen@uroweb.org

ERN EURO-NMD

European Reference Network on neuromuscular diseases

Contact: info@ern-euro-nmd.eu

ERN EYE

European Reference Network on Rare Eye Diseases

Contact: contact@ern-eye.eu

ERN GENTURIS

European Reference Network on genetic tumour risk syndromes

Contact: genturis@radboudumc.nl

ERN GUARD-HEART

European Reference Network on diseases of the heart

Contact: contact@guardheart.ern-net.eu

ERN ITHACA

European Reference Network on congenital malformations and rare intellectual disability

Contact: coordination@ern-ithaca.eu

MetabERN

European Reference Network on hereditary metabolic disorders

Contact: coordination@metab.ern-net.eu

ERN PaedCan

European Reference Network on paediatric cancer (haemato-oncology)

Contact: ERNPaedCan@ccri.at

ERN RARE-LIVER

European Reference Network on hepatological diseases

Contact: ERN.RareLiver@uke.de

ERN ReCONNET

European Reference Network on connective tissue and musculoskeletal diseases

Contact: ern.reconnet@ao-pisa.toscana.it

ERN RITA

European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases

Contact: contact-rita@ern-net.eu

ERN TRANSPLANT-CHILD

European Reference Network on Transplantation in Children

Contact: coordination@transplantchild.eu

VASCERN

European Reference Network on Rare Multisystemic Vascular Diseases

Contact: vascern.coordination@aphp.fr

bottom of page