Drapeaux ukrainiens

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ERNs and children’s hospitals work together to support Ukrainian children with rare diseases

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The 24 European Reference Networks (ERNs) for rare and complex diseases are united to support all Ukrainian patients.

ERNs are specialized in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine including rare cancer. 

The ERN 1600 experts centres are embedded in more than 300 EU hospitals, generally distributed in most or all EU countries (including neighbouring Ukraine) and Norway.

ERNs are committed to provide a HUB for rare diseases patients inside or outside Ukraine. 

This website provides information on each of the 24 ERNs as well as general information & news. 


 

Support provided by each ERN

 
 
 
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24 European Reference Networks (ERNs)

ERN BOND

European Reference Network on rare bone diseases

Contact: info@ernbond.eu

ERN CRANIO

European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders

Endo-ERN

European Reference Network on Rare Endocrine Conditions

ERN EpiCARE

European Reference Network on rare and complex epilepsies

ERKNet

European Reference Network on kidney diseases

ERN-RND

European Reference Network on neurological diseases

Contact: info@ern-rnd.eu

ERNICA

European Reference Network on inherited and congenital anomalies

ERN LUNG

European Reference Network on respiratory diseases

ERN Skin

European Reference Network on skin disorders

ERN EURACAN

European Reference Network on adult cancers (solid tumours)

ERN EuroBloodNet

European Reference Network on haematological diseases

ERN eUROGEN

European Reference Network on urogenital diseases and conditions

ERN EURO-NMD

European Reference Network on neuromuscular diseases

ERN EYE

European Reference Network on Rare Eye Diseases

ERN GENTURIS

European Reference Network on genetic tumour risk syndromes

ERN GUARD-HEART

European Reference Network on diseases of the heart

ERN ITHACA

European Reference Network on congenital malformations and rare intellectual disability

MetabERN

European Reference Network on hereditary metabolic disorders

ERN PaedCan

European Reference Network on paediatric cancer (haemato-oncology)

ERN RARE-LIVER

European Reference Network on hepatological diseases

ERN ReCONNET

European Reference Network on connective tissue and musculoskeletal diseases

ERN RITA

European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases

ERN TRANSPLANT-CHILD

European Reference Network on Transplantation in Children

VASCERN

European Reference Network on Rare Multisystemic Vascular Diseases

 

ERN video for patients and health professionals

Find out what the European Reference Networks (ERNs) are and how they might support them to identify diagnosis or treatment, in the case their health professional considers the support of the ERNs is necessary.

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