The 24 European Reference Networks (ERNs) for rare and complex diseases are united to support all Ukrainian patients.
ERNs are specialized in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine including rare cancer.
The ERN 1600 experts centres are embedded in more than 300 EU hospitals, generally distributed in most or all EU countries (including neighbouring Ukraine) and Norway.
ERNs offer the Rare Diseases Hub Ukraine, a dedicated focal point to provide specialized medical support to rare diseases patients inside or outside Ukraine.
This website provides information on each of the 24 ERNs as well as general information & news.
Support provided by each ERN
24 European Reference Networks (ERNs)
European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders
European Reference Network on rare and complex epilepsies
Contact: firstname.lastname@example.org / email@example.com
European Reference Network on inherited and congenital anomalies
European Reference Network on haematological diseases
European Reference Network on urogenital diseases and conditions
European Reference Network on genetic tumour risk syndromes
European Reference Network on diseases of the heart
European Reference Network on congenital malformations and rare intellectual disability
European Reference Network on hereditary metabolic disorders
European Reference Network on paediatric cancer (haemato-oncology)
European Reference Network on connective tissue and musculoskeletal diseases
European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases
European Reference Network on Transplantation in Children
European Reference Network on Rare Multisystemic Vascular Diseases
ERN video for patients and health professionals
Find out what the European Reference Networks (ERNs) are and how they might support them to identify diagnosis or treatment, in the case their health professional considers the support of the ERNs is necessary.