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The 24 European Reference Networks (ERNs) for rare and complex diseases are united to support all Ukrainian patients.
ERNs are specialized in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine including rare cancer.
The ERN 1600 experts centres are embedded in more than 300 EU hospitals, generally distributed in most or all EU countries (including neighbouring Ukraine) and Norway.
This website provides information on each of the 24 ERNs as well as general information & news.
Support provided by each ERN
24 European Reference Networks (ERNs)
ERN CRANIO
European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders
Contact: ern-cranio@erasmusmc.nl
ERN EpiCARE
European Reference Network on rare and complex epilepsies
Contact: info@epi-care.eu / ukraine.epilepsies@epi-care.eu
ERNICA
European Reference Network on inherited and congenital anomalies
Contact: ern-ernica@erasmusmc.nl
ERN EuroBloodNet
European Reference Network on haematological diseases
Contact: coordination@eurobloodnet.eu
ERN eUROGEN
European Reference Network on urogenital diseases and conditions
Contact: eurogen@uroweb.org
ERN GENTURIS
European Reference Network on genetic tumour risk syndromes
Contact: genturis@radboudumc.nl
ERN GUARD-HEART
European Reference Network on diseases of the heart
Contact: contact@guardheart.ern-net.eu
ERN ITHACA
European Reference Network on congenital malformations and rare intellectual disability
Contact: coordination@ern-ithaca.eu
MetabERN
European Reference Network on hereditary metabolic disorders
Contact: coordination@metab.ern-net.eu
ERN PaedCan
European Reference Network on paediatric cancer (haemato-oncology)
Contact: ERNPaedCan@ccri.at
ERN ReCONNET
European Reference Network on connective tissue and musculoskeletal diseases
Contact: ern.reconnet@ao-pisa.toscana.it
ERN RITA
European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases
Contact: contact-rita@ern-net.eu
ERN TRANSPLANT-CHILD
European Reference Network on Transplantation in Children
Contact: coordination@transplantchild.eu
VASCERN
European Reference Network on Rare Multisystemic Vascular Diseases
Contact: vascern.coordination@aphp.fr
ERN video for patients and health professionals
Find out what the European Reference Networks (ERNs) are and how they might support them to identify diagnosis or treatment, in the case their health professional considers the support of the ERNs is necessary.
